Ryaguzov Sasha
6 years old
()
Neuroblastoma of the small pelvis, the 3-rd stage with the metastases into the lymph nodes.


NEWS

 

29 Dec. 2008 Sasha has died...

 

27 January 2008
The last operation was conducted on October 18, 2006. On the 8-th day after operation a course of chemotherapy was carried out (under protocol NB-99) and is also the radioactive therapy was performed on the right humeral bone. Further after a recovery it's decided to carry out a high dose chemotherapy with auto bone marrow transplantation. The medicines as Busulfan and Melfalan were used. Sasha was placed in sterile boxing and the loneliness and communication with medical staff only he has passed very well. He feels great after Transplantation and is recovering now. Sasha and his mum live not in the hospital right now, but rent an apartment in Moscow. Sasha takes multi-vitamins and enzymes. There's still a radioactive therapy on a belly cavity ahead and taking of Roaccutan afterwards (about 6 courses). These are capsules - biological chemistry product. More founds are needed to cover this medical costs.

12 October 2007
There are unfavorable news – Sasha has got a relapse of illness. At the moment they are in Moscow; have passed the first course of anti-relapse chemotherapy. There was a MBG-scanning on September, 17. By results of KT - reduction of a tumor by 93 %. By results of MIBG - essential reduction of accumulation, in a humeral bone; there was a metastasis, at a tiny point. It’s decided to continue the chemotherapy. By results of analyses the 3-rd course will begin.
Sasha stands the treatment hard, parameters of blood are dropping as a side effect.
Support, both moral, and material is now very necessary for them.

21 June 2007
Sasha stays on the supportive therapy in Donetsk. In the first days of July he will go to Moscow for the planned inspection. The mom of the boy Inga plans to conduct in Moscow in the Institute of Immunology third supporting chemistry, since the doctors in Donetsk had disrupted the planned motion of treatment, by refusing in conducting of the chemotherapy in time.

16 March 2007
Message from hematolog@googlegroups.com (23-02-07): "Yesterday Sasha was operated. The tumor was removed and the 'stoma' was closed. Doctors are very content about the operation results. Now Sasha stays in the resuscitation, but according the doctors on Monday he will be transferred to the usual chamber. Parents hold themselves well...

21 November 2006
Message from hematolog@googlegroups.com (21.11.06): "Recently I have talked with Inga. The state of Sasha is not very well at the moment. There’s an urgent necessity in a donor for a tromboconcentrate. The very high percentage of people/donors is not suitable. Yesterday they had a blood treatment into the debt (from other people’s money). Chemotherapy is finished. Now are undergoing rays-therapy. Still one week of this therapy to go, but the thrombocytes are 33!!!! Sasha’s body covered with the bruises, he eats nothing. A donnor in Moscow is urgently necessary... "

Sasha is now treated in the Moscow hospital:
Institute of immunology
Kashirskoye shosse, 24
Tel. +7(495) 111-83-72, 111-83-01, 116-49-25.

The telephone of the mom Inga +79261142697

 

"My boy Sasha is 5,5 years old. On February 4 this year, his stomach began to be painful and the temperature had risen to 38 degrees. Pain was on the right side and the child had the signs of acute appendicitis. Without calling the ambulance we had arrived ourselves into the provincial children's hospital. The doctor has checked the child and came to a conclusion that this was not an appendicitis, but some problem (we could not even suspect what!) with the bowels.

The whole day we has spent in the general department, and after making echolocation the formation of retroperitoneal space with the size of 10.6 cm was discovered. The boy was transferred to the department of the 1-st surgery. Operation was assigned to 8.02.06. In the course of operation the biopsy was taken and the tumor was estimated as it was inoperable. It laid on the bladder in diagonal way, germinating urethra, the mesentery of bowels, thick gut and, the most terrible, that it was present in the veins. In the course of operation the doctors had derived the colostomy..."

The first block of chemotherapy was conducted in Donetsk (Ukraine). The boy had passed trough it very badly, practically did not arise for 2 weeks from the bed and ate nothing. Child has greatly lost weight. Our doctors advised to go to Moscow, or, if possibility allow, to Germany. So, we simultaneously approached one clinic in Munich and The SCIENTIFIC RESEARCH INSTITUTE “RAMN of Blokhin” in Moscow. The answer from Germany arrived in 2 weeks - the indicated sum was beyond any possibilities: from 80000 EUR. Moscow assumed us for 10-15.000 USD.

The second course of Chemotherapy was conducted in Moscow and Sasha went trough it better then the previous time. Recovery period was passed smoothly in Ukraine. When we arrived to Moscow for the study of the following course of Chemotherapy, the doctors had decided to make an operation, since tumor did not react too well to Chemo treatment.

The operation was conducted on 12 May, 2006. The surgeons from the clinic for the adults were invited to participate. Tumor was removed, but not completely, small piece remained on the rectum in a size of 2x2,5 cm. After inspection (fluorescent situ hybridization -FISH) and biopsy - it was decided to replace the bone marrow transplantation by one course of radiation and four courses of Chemotherapy.

The week after operation in Moscow the boy has passed a course of the radiation therapy.

One permanent difficulty remains during the treatment: not so much available donors for the Sasha’s blood group A2(+).

To means for the trip to the Moscow’s hospital were gathered by all enthusiastic helpers-volunteers. ENORMOUS THANKS TO ALL THEM! The collected amount was about 15.000 USD. At the moment only 6.000 USD are missing for a complete treatment. A half of this sum (3.000 USD) we already have; resting 3.000 we are trying to collect now.

This operation is very necessary for Sasha - the result of further treatment will depend on it. Help us, please, whith what you can!!

 

Mom - Trubina Inga

Adres:

83054, g.Donetsk,
ul.Politboytsov, d.20.kv.e
Home tel. +38-0622-588185
Mom: Trubina Inga Ivanovna +380506197816
Father: Ryaguzov Aleksandr Yur'evich +380506414930

Parents have opened an account for the collecttion of means to the child:

Kiev branch of "Bank prospect"
MFO 394675
Code OKPO 34225477
Recipient: Ryaguzov Aleksandr Yurievich
INAS 2490300455
Grivnas account: 26201400011011
Multy currency account: 26202400011021
Designation: Humanitarian financial aid to the treatment of the son Ryaguzova Sasha
J ur.adres: Ukranie, 83048, Donetsk, ul.Artema, 112

 

 

 

Read also here:
http://www.donor.org.ua/index.php?
module=help&act=show&c=8&id=144